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rarecancerrf

@rarecancerrf

Public Profile

Rare Cancer Research Foundation + pattern.org

Followers
1,480
Following
951
Posts
211

🔬 Finding cures for rare cancers. We empower patients to donate tissue and medical data to research through our platform pattern.org 🎗️Consent today!

Impact Score
77.1

Top 5% Globally

Profile Stats
Anonymous Browsing Active

Content Insights

Avg. Engagement0.44%
Post Frequency3.1 / wk
Audience HealthModerate
VisibilityPublic
Found 12 posts
rarecancerrf post - No matter where you are in your #RareCancer journey, there is an opportunity for
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2
2/7/2026
rarecancerrf post - Today is #GivingTuesday, which means now is the time to support #RareCancer rese
1
1
12/2/2025
rarecancerrf video - 🎥 WATCH OUR WHY: When Mark Laabs was diagnosed with #UvealMelanoma back in 2012
7
3/12/2025
rarecancerrf post - Every milestone is a moment to celebrate. As of today, 7 in 10 cancer survivors
12
6/5/2026
rarecancerrf post - ASCO 2026 was a success for RCRF, filled with onsite meetings with existing part
19
6/3/2026
rarecancerrf post - Our Pattern.org President Barbara Van Hare is joining OsteoBites this Thursday,
3
6/2/2026
rarecancerrf post - Fresh tissue is currently en route to the RCRF Pattern Biobank from a patient at
4
5/29/2026
rarecancerrf post - Heading to ASCO Annual Meeting next week? We’d love to connect with you there. J
5
5/22/2026
rarecancerrf post - We’re proud to share research presented at the AACR Annual Meeting 2026 on a pat
3
5/7/2026
rarecancerrf post - We’re inviting members of the rare cancer community to share their stories and p
3
5/1/2026
rarecancerrf post - Rare cancers are not rare in impact.
Together, rare cancers account for 1 in 4 c
9
4/24/2026
rarecancerrf post - Rare cancer patients shouldn’t have to feel rare when it comes to care, options,
3
4/22/2026

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